2018 Walk to End Lupus Now, Boston

Team Maitino

Welcome to our fundraising team page.

Imagine a day when doctors can say, "There is a cure for lupus". Until that day though, there is work to be done. That's why we are taking action in the fight against lupus. Join us as we participate in the Lupus Foundation of America's Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.

I am not sure if you know this, but I had been diagnosed with Lupus many years ago. I can't even put my finger on the exact year because it has been a question mark for the last two decades. You see, Lupus is one of those things that you can't diagnose 100% from a blood test or an x-ray. It is a number of symptoms that are different in everyone and have to come together in a certain way to complete the diagnosis. It sounds vague, I know but that's the problem....

You can read the scripted info below and go online to learn more about this crazy autoimmune disease. My story is unique like every Lupus case out there. I had a bad sunburn once in the late 90's which is when I first heard the term "Lupus". That went away and then I had some problems with my thyroid. Years past again and I had some kidney issues when I was pregnant with my beautiful daughter, Francesca. Finally around 2011 I was having crazy joint pain and along with some other tests they came to the conclusion that it's Lupus. I remember my doctor saying "it's the good kind of Lupus", whatever that meant. Since then I have been on some medications and most recently some lung issues. Without boring you with all of the details, they don't have a lot of informaion on what causes this disease or how to handle many of the problems that occur because of it. That's why I want to do something to help move the research along.

Will you join our team and help us reach our fundraising goal? You’ll be supporting the Foundation's efforts to improve the quality of life for all people affected by lupus. You can also support by making a secure contribution on our walk page. Every single dollar counts!If you would like to keep an eye on our fundraising progress you can view it on this page.

If you would like to donate, that would be very generous but don't feel obligated. If you would like to join the team and walk that would be awesome, but I know most of you have crazy busy lives and I don't expect that from anyone.

Thanks for taking the time to read about my story. Wish me luck as this is all new to me and I am a little nervous!

LOVE,

Becky

 

 

 

 

 

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.

Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! 

 

View More
View More

Thank you to our sponsors:

 

 LUMINARY SPONSOR:               TRAILBLAZER SPONSOR:                  MEDIA PARTNER: GROUNDBREAKER SPONSORS:       
biogen MERCK_EMDS_ RPurple_RGB.jpg
NBC10 Boston        

Corbus Pharma

BWH Lupus Center 2018