2022 Walk to End Lupus Now, Chicago

Squid Squad

Welcome to our Squid Squad team fundraising page.

Imagine a day when doctors can say, "There is a cure for lupus". Until that day, there is work to be done. Join us as we participate in the Lupus Foundation of America's Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.

This is Squid Squad's fifth year walking with the LFA, and we're not slowing down anytime soon.

Will you join our team and help us reach our fundraising goal? You’ll be supporting the Foundation's efforts to improve the quality of life for all people affected by lupus. You can also support by making a secure contribution on our walk page. Every single dollar counts!

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known cause or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.

Together, we can solve the mystery of lupus. Join our team today and support our efforts!

Sydnee (AKA Squid)’s Story

“It’s difficult to pinpoint the exact moment I knew something was off in my body. Fragile and achey joints, heat strokes and sun sensitivity, recurring infections, migraines, numbness, widespread pain, debilitating fatigue and brain fog -- some of the many symptoms I suffered for over 10 years before finally receiving a diagnosis in 2018. Doctors continually dismissed me, so I learned to dismiss myself. Unfortunately, this is more often than not the case with lupus and other invisible illnesses (many of which affect women at a much higher rate). So, even though it took a bad flare-up to finally get answers, I am thankful that a physician finally took me seriously and identified the underlying condition that had infiltrated so many parts of my life. Connecting the dots meant I wasn’t crazy and it meant I could finally take back control of my life. It has been 4 years since I started treatment and incorporated positive lifestyle changes. I don’t know if I’ll ever be symptom free, but I’m learning to manage the condition with the help of my supportive family and friends.

Lupus is one of many invisible illnesses that has patients looking fine and healthy on the outside while they are struggling in pain on the inside. This can be a lonely and isolating place; advocacy and awareness are so important for invisible illness warriors to feel seen and understood. This is why I continue to share my experience and raise funds for the Lupus Foundation of America.”

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