2022 Walk to End Lupus Now, Orlando

We walk for Jenifer #forever29
We walk for Jenifer #forever29

Jenifer2019

Welcome to our fundraising team page.

We Walk in memory of Jenifer  Toole 

This walk is very personal to us. We lost our daughter Jenifer to lupus at the young age of 29. Jenifer started getting sick at as a teenager and the doctors did not diagnose Jenifer with Lupus until 2019. It was very hard on Jenifer to constantly get sick and not understand why. 

At 19 she had a miscarriage, at 23 she had 5 blood clots, at 25 she had mitral valve replacement. She was constantly in hospital for pneumonia. She would receive steroids and antibiotics and she would always get better until it all struck again. In 2018 she started getting sick more frequently. We lost count how many times she was in the hospital in 2018 and 2019. She always fought hard with everything she had. 

In April of 2019 Jenifer was finally diagnosed with Lupus. Her last stay in the hospital started on October 13, 2019 and that stay lasted 58 days. She was on a ventilator the entire time she was in the hospital. Lupus was attacking her lungs, kidneys, brain and blood. While in the hospital she had 4 strokes, received countless blood transfusions and several sessions of plasmapheresis. Jenifer lost the fight with Lupus on the morning of December 10, 2019. Jenifer never had the opportunity to fight Lupus sooner because it took too long to diagnose. 

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 

Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! 

 

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THANK YOU TO OUR GENEROUS CORPORATE SPONSORS


CHAMPION SPONSORS

                  

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Us in Lupus Red
 
 

 SILVER SPONSOR

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