Welcome to our fundraising team page.
Olga Lucia Torres has been sick her entire life: starting with a pediatric pituitary adenoma, later developing lupus, Raynaud’s disease, Sjogren’s disease, arthritis, scleroderma then suffering a devastating brain injury that left her disabled. As a first-generation Latina, one of the eight founding lawyers of the Bronx defenders and now professor of narrative medicine at Columbia University, Olga Lucia now identifies as an advocate, survivor and mother of a miracle daughter. She writes personal essays and articles about what it’s like to live with lupus and the other health conditions she has.
Working as a lupus advocate led her to meet Addie Winans through LFA. Addie is 10 years old and a 5th grader in the Twin Cities area. She was diagnosed with lupus at the age of 8, and she almost immediately became a lupus advocate. Addie will tell anyone who will listen about the importance of funding lupus research and supporting her many friends in the lupus community.
Even though Addie and Olga live in different parts of the U.S., they hope “Butterfly Warriors” will show others that we need to unite to fight and defeat lupus. We hope to inspire many people to learn about lupus, donate, and walk with us.
We hope that you will join our team of Butterfly Warriors to make an impact and help create a world where lupus does not exist.
Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts!