10.10.20 Walk to End Lupus Now San Diego Virtual

LUPUSaurusRex

 

Welcome to our fundraising page! 

Thank you for taking the time to become aware of this autoimmune disease, lupus and my story on how to survive it. Just by reading this, you are walking beside me and I appreciate it from the bottom of my heart.

On 10.10.2020 the Lu family will be walking and fundraising to find a cure to end Lupus. I’ve been living with this autoimmune disease since I was 17 years old and it’s never been as challenging as the past 4 months of our life. I know one day a lupus flare will take my life but today, I’m joining the race to find a cure and help all of those who are fighting the same invisible but deadly battle that I am. From my appearance alone, you can’t tell that my body is attacking itself, you’d think I was healthy and fine. the truth is some nights my rheumatoid arthritis hits at 3am and I wake up in tears and pain that my husband has to help me to the bathroom and give me pain medication to get through the nights. Some mornings I brace my mind to give my body a second to process to realize if my arthritis level is going to be mild enough for me to get out of bed without help. My hair has fallen out so many times due to lupus flares that it’s so thin, I should be using baby hair ties at the end of my braids. & whether I’m cold from winter weather or walking into the fridge section at costco, my toes and fingers turn blue because of reynauds phenomenon. I live in this beautiful sunny city and guess what triggers a lupus flare? stress and sun. During a lupus flare, a red rash appears on the bridge of my nose and both cheeks resembling a butterfly which is why that icon represents lupus.

This is only a glimpse of my battle with lupus, the daily medications, especially prednisone, that I HAVE to be on causes so many side effects that most days I feel that it’s not worth it. But I take it for my family because I know I have to fight this battle with everything I have so I can witness my own kids growing up and finding their own love, passion, and happiness and to grow old with my husband.

if you can, please support the Lu family in our walk to end lupus. #lupusaurusrex #livingwithlupus #lupusfoundationofamerica #fwiwy

Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? Any generous contribution can make a definite impact and is a tax write-off. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.

Imagine a day when doctors can say, "There is a cure for lupus". Until that day though, there is work to be done. That's why we are taking action in the fight against lupus. Join us as we participate in the Lupus Foundation of America's Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.

Will you join our team and help us reach our fundraising goal? You’ll be supporting the Foundation's efforts to improve the quality of life for all people affected by lupus. You can also support by making a secure contribution on our walk page. Every single dollar counts!

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
08/13/2020: Today we had a Lupus Foundation of America kick-off zoom event and I won the grand prize! I’m also the number one walker at the moment and my team is number 2 overall in socal. So thank you to everyone who has supported me and sent kind words in my walk to end lupus. We still have time to make it to number 1! Need a tax write off? But seriously, the support has been so uplifting

UPDATE: my last set of bloodwork was not the results we had anticipated as my levels only went down one point even after all the prednisone. I am currently awaiting my insurance to approve a specialty medication called Benlysta. All of the side effects are covid-19 symptoms so I will be regularly getting tested once I’m on it. I’m trying all avenues of healing- medical, natural, spiritual.. everything! I just saw a dermatologist today because when my rheumatoid arthritis flares, I’ve been getting sores on my joints and pads of my fingers and none of my drs know what it is so we’re going to have to catch it on day 2 and biopsy it. Next week I will be seeing a urologist to try and get this kidney stone out and see if that helps with my inflammation markers. Then the following week I will be seeing a physical therapist for the pain in my neck, upper and lower back. Hot mess express but I’m alive and I’m here for the battle #LUPUSaurusRex #livingwithlupus #lupusfoundationofamerica 

Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! 

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