It never occurred to me that one day I would wake up sick and never get better.

I was diagnosed with Systemic Lupus Erythematosus (SLE) in 2015. I was lucky to be diagnosed rather quickly. On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms. Lupus is known as "the great imitator" because its symptoms mimic many other illnesses.

    Lupus is an autoimmune disease in which the body’s immune system attacks healthy tissues and organs. The way I explain it: “My immune system is trying to kill me”. There is no cure for Lupus. The goal in treatment is to control the symptoms. It is believed that between 10-15 percent of people with lupus will die prematurely due to complications of lupus.

    I am well controlled right now. I take all of my many medications, eat right, exercise and go to all of my doctor’s appointments. When I have good days, I know I will pay for it later. Like most Lupies, I overdo it on a good day and suffer afterwards. Sometimes I just want to feel like a “normal person”.

But I continue to fight. I fight for me. I fight for my family and those who love me. I fight for the Lupus Warriors that can’t fight for themselves.

On October 12, 2024 I am participating in the 33rd Annual Lupus Loop and Walk to End Lupus Now in Philadelphia. My team is Tatams Loopy Titans. We’ve been doing this event since 2015. (Even during Covid, we did it virtual.) Our fundraising goal is $1,000. This is for research, programs and awareness. Won’t you help us reach our goal by making a donation or joining our team? You don’t have to be a runner. This is a run or walk event. About half of our team walks.

Please join in to help solve the cruel mystery of Lupus.