I would like to take a few moments to convey to you the reason why I am participating in the "Walk to End Lupus Now." As someone who was diagnosed with Systemic Lupus Erythematosus (SLE) in 2012, I still remember the moment the doctor informed me of my condition vividly. Unfortunately, it took almost three years of constant pain before I received my diagnosis, as Lupus is a complex disease that requires a lengthy diagnostic process. This needs to change.
Initially, I did not know how to react to the diagnosis, as I had never heard of this disease before and was quite frightened. The name itself sounded unpleasant, and I did not want anyone to know that I had it. At one point, I even thought that death would be preferable to living with Lupus, and this was a lonely and depressing time in my life. Only my closest friends and family knew that I had this illness, and I was in denial about it for years until I decided to research it myself and seek support from my rheumatologist at the time.
Lupus is a chronic autoimmune disease that can cause a variety of symptoms and complications. It has had a significant impact on my life, causing both high and low periods known as flares and remissions. During flares, I have experienced intense joint pain and swelling, severe fatigue, and fever, which have made it difficult to carry out everyday activities. Even during remissions, I still experience ongoing fatigue and joint swelling and pain. Living with Lupus has been emotionally challenging and has required considerable support from my family and friends. However, I am doing my best to manage it and live my life to the fullest.
I am sharing my story in the hopes of providing people like me, who are afraid and ashamed, with the necessary resources to understand Lupus and not feel embarrassed about it.
Donating to Lupus research or advocacy organizations can have a significant impact on the lives of those living with the disease.
Donations can help fund research into better treatments and a potential cure for Lupus. Research can help identify new drug targets and therapies, as well as help develop more effective diagnostic tools.
Donations can also support organizations that provide support services to people living with Lupus, such as patient education programs, support groups, and assistance with access to healthcare.
In addition, donations can support advocacy efforts aimed at increasing public awareness of Lupus, improving patient care, and advancing Lupus-related policies and legislation.
Overall, donating to Lupus organizations can help improve the lives of those living with the disease by supporting research, providing support services, and advocating for better patient care and policies.
There are various types of Lupus, each with its unique characteristics and symptoms. The most common types are Systemic Lupus Erythematosus (SLE), Cutaneous Lupus Erythematosus (CLE), Drug-Induced Lupus, Neonatal Lupus, and Lupus Nephritis. Lupus can manifest differently in different individuals, and some may experience a combination of different types. A healthcare professional can help diagnose the specific type(s) of Lupus an individual may have and develop a personalized treatment plan.
I have SLE, but I sometimes feel like I have a combination of all the above. However, I am no longer afraid or ashamed. We will fight this disease together.
I humbly request your support to reach my goal and help find a cure for Lupus.