Hi Everyone, I am participating in the upcoming Walk to End Lupus in Boston this October!
2 years ago I was diagnosed with an auto immune disease called Systemic Lupus. At the time I had never heard of Lupus or understood what it was. Systemic Lupus - to put it simply - is when your immune system mistakenly attacks healthy tissue. It can affect the brain, skin, joints, kidneys and other organs. Overtime, these constant attacks (flares) from our immune system cause irreversible damage to organs.
To give insight, every 3 months Lupus patients must get blood work done to monitor levels. This is to make sure there is no organ damage or sister auto immune diseases, they always come in two’s! These appointments are frequent but are so important in catching any signs of organ involvement. Autoimmune diseases are complex, sneaky and mostly invisible from the outside looking in. You never fully understand unless you’re in it. I give credit to everyone out there with an Autoimmune disease.
My Story: It started with Mild Systemic Lupus which I thought was easy to maintain with it just being “mild”. I continued doing all the things I have spent my entire life doing - outside in the heat, the sun, skiing in the cold, on the go all weekend every weekend, teaching back to back sessions at work, being active - All pretty normal! Every flare that occurred was an indicator my body is attacking itself on the inside. Over the last year, the stress on my body was adding up. In order to help prevent further damage, I administer a subcutaneous injection into my stomach to help avoid organ involvement. It’s been challenging to say the least. Although It’s a big adjustment, it will help get me to a level where I hopefully will not need it any more.
Id like raise money towards this foundation and hope to be a contributor to research that may help find a cure to help people with Lupus who have it worse than me.
Regardless of any donation, I really just appreciate people taking the time to read about the complexity of Auto Immune diseases.