Hey Guys it's Jesse and Im Walking to End Lupus! Will you join me in my fight???
I was diagnosed with Mixed Connective tissue disorder at the age of 22 in 2009. One of the many problems I face with this diagnoses is Lupus SLE. Being someone who had been working since the age of 14 it was hard for me to think of what my life would be like having to deal with such a debilitating disease and still attempt to live a full and meaningful life. Over the passed 11 years I have had my disease bring out a Warrior in me that I never knew existed, I have learned to live with my disease instead of letting it control my life and the day I decided to take control of my life back was a day that changed who I am for the better. I try to find the positive in everything I go through and through my fight against Lupus I was brought to my passion for photography. Photography is my happy place and it is my way of bringing some beauty to a world that for me can sometimes be very diffcult and dark. If it was not for my Lupus diagnoses I do not know if I would have ever discovered my talent in this field or love for it so in this way it has been a blessing! I now have a desire to inspire and hope to use my story and my passion to inspire others to never give up and always know there is always a light at the end of the tunnel! Thank you for being apart of being a bright light in my journey to guide me along the way in my battle and giving me hope in knowing that I am never alone!!
I live now live by the motto that I have Lupus but it does not have me!!
Love, Jesse aka "Lupie the Lupus Butterfly" ;)
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!