Hi! I'm Jess, and I am walking to end Lupus not only for myself, but for my daughter Riley!
This past February mine and my family’s life changed in more ways than one! We welcomed our miracle baby into the world but soon received the news that she has an extremely rare condition called Neonatal Lupus affecting less than 1% of babies. We also learned the only way she could have gotten this was through my pregnancy..
Lupus is a chronic autoimmune disease that can damage any part of your body. The immune system is unable to tell the difference between healthy tissue and viruses as a result the body creates autoantibodies that attack and destroy the healthy tissue.
We were told that there was no way we could have known that I had the gene for Lupus since it is not currently active & unfortunately the only way we would have known is if I had a flare up for the first time, or finding out like we did, through Riley. I am walking for answers! No parent should have to go through this!
Being a first time mother is overwhelming to begin with, learning your daughter has a rare condition is extremely overwhelming and then learning the only way she got it was from you.. how could it get any more overwhelming?!
We are blessed with an amazing and loving support team; it truly does take a village!
Check out more of Riley’s story on the team page! Thanks for helping us put an end to this!
I’m Walking to End Lupus. Join Me?
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!