To every Icarus unafraid to fly,
February 2020 marks eight years since I was first diagnosed with Lupus. My first rheumatologist remains the best deliverer of bad news as he informed me that "this is the best time in human history to be diagnosed with Lupus.” It was really a comfort to me as he assured me that this was no death sentence. A reassurance I needed after blood clots in both lungs, two bouts of pneumonia and being catatonic.
The best time in human history to live with the worst thing that ever happened to me. I was a newlywed, a couple of years into my teaching profession, and at the time, could think of nothing worse than having a debilitating disease. I was overwhelmed with fatigue daily. I had to accept the smallest of victories and learn to accept myself, no matter how much the hardware would not cooperate with the software.
It brings me much joy to report that 2019 has been my healthiest year since my diagnosis. The past eight years have truly taught me that life is a precious gift. I want to spend my days reminding everyone of this gift and this year I am celebrating by participating in the Walk to End Lupus.
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done.
Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus?
A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!
Yours in victory,