After being diagnosed with Systemic Lupus Erythematosus (SLE) in 2018, I decided that lupus chose the wrong woman. I want to spread awareness and raise funds to fight this cruel, mysterious, often invisible, and widely misunderstood disease. With lupus, the body's immune system mistakenly attacks its own healthy organ systems. It is unpredictable, has no known cause, and no known cure. This is why raising money for research, support, education, and advocacy programs is so important.
Like so many, I suffered for over 10 years before finally receiving a diagnosis in 2018. This is one of the major missions of the Lupus Foundation of America - to speed up the time of diagnosis so that those struggling with lupus are able to find treatment as soon as possible and take back control of their lives. The LFA also played an integral role this year in pushing the federal government to ensure continued availability of hydroxychloroquine for lupus and arthritis patients admist the pandemic fear.
It has been 2+ years since I started treatment and incorporated positive lifestyle changes. I don’t know if I’ll ever be symptom free, but I’m learning to manage the condition with the help of my supportive family and friends. This is Squid Squad's third year walking with the Lupus Foundtaion of America (LFA), and we're not slowing down anytime soon. In 2018 we raised $11,000. Last year, we raised $12,000. THIS YEAR WE AIM FOR $20,000.
I invite you to learn more about the Lupus Foundation of America and the great work we're doing to fight lupus. You can give a secure gift online directly to my walk page and/or you can join my Squid Squad to walk virtually with us!