In March of 2015, after five years of serious health issues which included a blood clot / rib removal / having zero blood platelets for almost a year / infusions every three weeks, I had no idea my life was going to be changed forever ... I was diagnosed with systemic Lupus, a disease I knew absolutely nothing about. I had been admitted to the hospital with sever pain in my chest and after many hours and numerous tests (x-rays / cat scans) they found the cause was a build up of fluid in the sac surrounding my heart. I spent the next week in the hospital, having more tests, and being seen by different doctors who were trying to figure out what was causing this. With the help from my devoted hematologist, Dr. Michael Bar, enough “indicators” were identified to diagnosis me with Lupus. The fluid then began to collect in the protective sac surrounding my lungs which resulted in a series of very painful,pleural effusions.
Now, three years into my diagnosis, I take what is the perfect cocktail of medications (for now) and have chemotherapy every six months, which has been keeping me in remission for over a year. I am incredibly fortunate to have the medical team I have behind me ... Dr. Shikha Mehta, Dr. Michael Bar, Dr. Caroline Gulati, Dr. Stephen Bauer, Dr. Eric Brown, Dr. Edward Portnay, Dr. Richard Weber ... and the amazing Dr. Fotios Koumpouras. I am super grateful for all that they have done and continue to do for and my fight against Lupus.
My Cousin Sami sent me an article, when I was first diagnosed, titled The Spoon Theory. I read an exact description of how I feel every day ... someone understood, someone knew the struggle and put it into words her Friends and loved ones could understand. It is a long read but worth it if you have no idea how Lupus effects a person on a daily basis.
Thank you for visiting my Walk To End Lupus Now donation page and reading my story,