I’m Walking to End Lupus. Join Me?
When I was first told that I might have lupus, my first thought was that my high school science teacher had it. That was all I knew about it. So I did what everybody does now; I went to the internet. I read all of the horror stories and was terrified. When you're given a diagnosis, you're given a prescription. No information. It's up to you to learn about it. I thought my life was over. As a single mother who makes a living working in the sun, I was now told that I cannot be in th sun. I felt hopeless, like no one could even begin to understand how it felt to be told that you have this debilitating illness.
Then I began to try learning everything I could. I looked into support groups, but there were none nearby. I felt so alone. I finally decided that I would drive over an hour to go to a support group. As I looked up the information, I found that there was a new group not far from me, offered by the Lupus Foundation of America, Connecticut Chapter. After the first meeting I finally felt like there were other people who have been through the fear and pain that I am going through. We talk, we cry, we laugh, and we learn from each other. I am so thankful for not only the support I have found, but also the friendships I have made.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!