05.10.2022 - POP #PutOnPurple Day - if you have any kind of purple [shirt, socks, nail polish, a drawn on purple heart, jewelry, etc.] please show your support for myself and all the other amazing warriors. Let’s raise awareness during lupus awareness month!
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10.01.2022 - Walk To End Lupus NOW! is finally returning in person! ☺ #PutOnPurple
DATE: Saturday, October 1st, 2022
EVENT SCHEDULE: Check-in: 8:30 a.m. | Ceremony: 9:30 a.m. | Walk: 10:00 a.m. | Route Length: 2 miles
LOCATION: The National Mall, between 7th St. and Madison Ave.
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Lupus Nephritis is a chronic illness and hidden disability that for me, affects my kidneys, other parts of my body, and my life in general. Everyday is a mystery, but I hope that one day we'll find a way to help combat it completely. Funding for research and medicine is key, so I hope you'll help me make it one step closer to having more good days than bad. If you can donate anything, even $5, all the money goes to the LFA - an organization close to my heart.
I was diagnosed 17 years ago, so I've been living with SLE for over half my life. I don't like to always show how I'm really feeling when I have aches or my "wolf" patch or the constant fatigue, but my positivity has gotten me through so much. I have started a monthly infusion and am at my lowest prednisone dose that I've ever been at - I started this journey taking 40mg DAILY and after many trials and sicknesses hindering the decrease, as of July 2022 I am down to 2.5mg ONCE A WEEK, which is huge for me I know a lot of others know that med struggle and I hope events like this continue to help and maybe one day we'll find a cure!
Especially in the past couple of years, it’s been so difficult trying to navigate through lupus and covid. The mental, social, & physical stress has been taking a toll more than ever. And the constant wondering if one minor thing I do will affect my routine is exhausting. I just want to help to be part of the solution and would love for you to be part of it too!
We got this! I truly believe my friends and family are in full support and I feel so lucky to have that.