I’m Walking to End Lupus. Join Me?
My journey began long before I realized what was happening but in 1994, at the age of 35, I became very ill. I began having stiffness in my knees and would wake each morning feeling like I was 70 years old. Then I began to have discoloration in my ears and various rashes. Along with this I had digestive issues which I thought were related to my endometriosis. Then I was so sick I could hardly move. Within one week I lost approximately 20 pounds. I was physically and spiritually a mess. I was not sure what was going on and I feared the worse. I had experienced some bruising and I could not bear to have anyone touch me and certainly not put any pressure on my skin. I was very sensitive to touch.
After a few doctor's visits and a lot of tests, I was diagnosed with mixed connective disease. Some time later I was diagnosed with Lupus. The road has sometimes been a little rough but I am doing well. I was diagnosed with nephritis. In 2004 I was hospitalized with Pleurisy and had to have fluid drawn off my lungs. Two months later I was diagnosed with a mild case of pericarditis. Through the years I have had many flares and they have ranged from extreme to mild.
Recently, I have been undergoing tests to determine if I now have pulmonary hypertension. This kind of disconcerting due to the fact that I had a niece who died from cardiopulmonary hypertension. Still I must go on never knowing from day to day what system or organ will be affected next. When I think about the possibilities of what could happen, I get a little discouraged but when I realize all of the possiblities of what I can do the sky is the limit. I get to share my story with others in hopes that they may be encouraged through their journey.
Imagine a day when doctors can say, "There is a cure for lupus". Until that day though, there is work to be done. That's why I am taking action in the fight against lupus. Join me as we participate in the Lupus Foundation of America's Walk to End Lupus Now! in Tampa, FL to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
On Monday, April 23, 2018, I had a cousin to die from complications of Lupus. So the impact of this disease is very real. This is a personal issue and it is affecting my family in more ways than one. Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!