I’m Walking to End Lupus. Are you with me?
Did you know on average it takes 6 years to get a formal diagnosis of Lupus? It took me 10 years- that’s an entire decade of testing, pain, illness, treatments that didn’t work, and worst of all, NO ANSWERS.
I was diagnosed with Lupus 16 years ago and since then have been faced with many challenges. Though I've been fortunate to enjoy periods of remission, I realize I could wake up tomorrow and have my next flare without warning. For myself and millions of others affected by this disease, this is the reality we live with everyday.
During remission I still suffer from chronic pain due to permanent nerve damage, fatigue, and high susceptibility to infection. My course of treatment is not limited to daily doses of medication- it also includes chemotherapy infusions every 6 months. Until another form of therapy has been approved for my form of lupus, this will be for life.
Lupus is with me everyday- and I am working to spread awareness and find a cure for this disease that afflicts so many and is known and understood by so few.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Join me on October 19, 2019 as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in Boston, MA to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!