“We are all fixing what is broken. It is the task of a lifetime. We'll leave much unfinished for the next generation.” Abraham Verghese, Cutting for Stone
This is my ninth year of trying to fix what is broken from the on-going damage left in the wake of active Systemic Lupus Erythematosus (SLE or Lupus). Lupus is a disease of unmet needs that steals lives.
The Lupus Foundation of America's Walk to End Lupus Now™ brings an opportunity to become directly engaged and involved with a task of a lifetime.
Focusing on the task at hand, I walk.
I walk because I can.
I walk despite the loss of a planned “normal life”.
I walk because I continue to mindfully recognize the blessings this loss has brought: the importance of friends and family; patience; perseverance; humility; self-acceptance; and getting to know what I fondly call a sub-culture community of “Lupies” to share our unique challenges, defeats and achievements.
I walk as a personal resolve to carry on the fight for those who currently suffer in silence and for those who have suffered and passed.
I walk to raise awareness and to support finding a cure for Lupus.
We may leave much unfinished for the next generation, but my hope is that we pass on expanded knowledge and better tools to fix what is broken.