I am Walking to End Lupus. Join Me?
Dear Friends & Colleagues,
May is Lupus awareness month and for me, it hits home. As you may know, Lupus has a personal face for me. My daughter, Joy, battles this disease on a daily basis. Since her immune system is so compromised, she is unable to fight off viruses that we normally can without much help. When Joy catches a cold or virus, it may land her in the hospital, going to the ER, and then usually having to stay at least overnight with I-V’s of fluids and antibiotics to make sure everything is under control which means leaving her family again to manage in her absence and disinfect the whole house as a necessary precaution prior to her return home. She is one of the strongest people that I know and won’t allow her disease to take control of her life. Joy was diagnosed with Lupus 12 years ago after the birth of her 2nd son and a terrible misdiagnosis of Postpartum Depression. Because of her inability to pick up her new born, lack of physical strength and pain, they jumped to the conclusion of Postpartum Depression. Though she complained of severe pain all throughout her pregnancy, her doctor just told her that it was pregnancy pains. After "counselling" it was determined that it wasn't a psycholgical problem but definitely a physical problem. After being admitted to the hospital with a raging fever of 106 and severe pain, it took a stay of a week with test upon test. It was finally determined and Joy was diagnosed with Lupus. She was lucky that it didn't take the 6 years that most have to endure before finally being correctly diagnosed.
On a happier note, Joy works at a job she loves, matching people with their ideal pet to adopt (an adoption counselor). She works parttime at the T.A.I.L.s shelter in Dekalb. She not only works at the shelter but she also fosters an occassional dog. Otherwise, she is a stay at home mom raising Noah and Alex, my grandsons, with the help of her husband Jake.
Sunday, June 19, 2019, I will be walking in the annual Walk to End Lupus Now™ in Chicago at Montrose Harbor in her honor to raise funds for the Lupus Foundation of America. The Lupus Foundation is the only national organization that provides direct services to people with Lupus. In addition, they fund important research that will one day lead to a cure for Lupus. This is now more important than ever to promote the research for new drugs to be approved by the FDA to specifically treat Lupus. The medications she takes can have serious and toxic side effects and insurances decide if they will pay for the medicines that are keeping her alive and active. That's why your help is needed in walking for a cure! Please spread the word to anyone you believe would support me in the Walk to End Lupus Now™.
If you are interested, I would like to invite you to join myself, my family, and our team, My Pride My Joy, to take part in the walk on June 9, 2019, at Montrose Beach in Chicago at Registration begins at 9 am., Ceremony at 10am and walk begins at 10:30 am. It is a morning walk so those suffering from Lupus can also participate with less severe effects from the sun.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity and support!