Dear Family and Friends,
This is my fifth year fundraising for the Lupus Foundation of America. With your help, I’ve raised close to $60,000! Your continued efforts never cease to amaze me and each year I’m blown away. I’ve been getting closer and closer to the $20K mark each year, so I’m setting my fundraising goal at $20,000 and know that together we can reach that!
It’s tough to know what to write here sometimes. How do I ask for support when I need support constantly?
Fundraising and hosting my golf outing has become incredibly dear to my heart. I pour my heart and soul into these events and keep my eye on the prize; knowing how many people the Lupus Foundation will help.
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus.
By raising funds for The Walk to End Lupus Now®, you are helping the Foundation:
• Lead special research initiatives, fund innovative studies, and advocate for increased public and private investment in lupus research to advance the science and medicine of lupus;
• Translate research findings into useful programs, information, and tools for people with lupus, and ensure health professionals know about new means to diagnose and manage the disease;
• Conduct outreach efforts to increase public understanding of lupus, and share stories of those who suffer from the disease to rally public support to join the fight to end lupus; and,
• Provide caring support to people with lupus, their families and their caregivers, and help guide them through the complexities of living with lupus.
I will walk this year, either at the South Street Seaport or at my home (where my door will be open for anyone to join). Again, a perk of lupus is having numerous backup plans in place for your “planned” plans.
It’s hard to ask more of you, as so many have helped tremendously already. But I’m not exaggerating when I say that EVERY single dollar helps…more than you know.
Stem cell therapy, using mesenchymal stem cells (MSCs), is one of the most promising frontiers in lupus research today. An innovative study is being led by Gary Gilkeson, M.D., and Diane Kamen, M.D., of the Medical University of South Carolina (MUSC) and marks a bold step forward in lupus research, which has only had one drug that was specifically developed for lupus and approved by the U.S. Food and Drug Administration (FDA).
I have been on that drug now for almost three years, and it has helped me tremendously. I have switched over to a weekly injection and have been having more good days. But I am still not where I could be physically. I see my doctors all the time. I take a number of medications every single day. And I still cannot work, which breaks my heart.
I do however have extremely high hopes for the current research being done.
In a way I feel like I’m taking matters into my own hands. I’m tired of feeling sick, and I’m tired of seeing people suffer and die from this illness. By fundraising, we can help the nearly 1.5 million Americans living with lupus. Enough is enough with years of unknown diagnoses, failed treatments and lupus in general.
We need more awareness.
We need more funding.
We need more research.
And we need a cure.
In addition to the walk, the fourth annual ‘Nicole’s Links for Lupus’ will be held on Tuesday, June 25th and I’d love to see as many of you as possible! If golf isn’t your thing, there’s a lunch held afterwards with raffles, auctions and some fun surprises.
Please click on the link below to visit my personal fundraising page. You could also become a fundraiser of your own on my team and if you raise $100 you earn an awesome t-shirt! Did you know that many companies match donations? All you have to do is ask! Feel free to reach out to me and I can help connect you with the right people or provide any additional information.
Let this year be OUR year. Let’s make it one to remember.
Thank you so much for your continuous support, generosity and love. I know that one day I won't have to write this letter because we WILL find a cure.
All the best,