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Welcome to Colleen Hann's Personal Page

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It all started with a sun rash that appeared after spending a week at the beach in the early 1990s. My dermatologist said I had sun poisoning. That seemed unusual, as I have spent many years at the beach before without any issues. At my next visit to the dermatologist, I was diagnosed and treated for rosacea, and received antibiotics to treat this. Each year, my butterfly rash has grown much more pronounced, and I often did not feel well after spending too much time in the sun.

Then, while in college in the mid-1990s, I had a serious situation in which I was hospitalized for a week with pneumonia. After years of infections, exhaustion and joint pain I was asked to see a rheumatologist. It wasn’t until 2010 that I was then diagnosed with systemic lupus erythematosus, or SLE.

In my case, lupus is affecting my skin and joints. I have trouble with every day activities like getting in and out of the tub. Some days, combing my hair is a challenge because I can’t lift my arm. This is very frustrating to me, as I can’t do the things I used to love to do such as play the piano, ski, run, or meet the demands of my job.

Support has been critical to improving my health. I am grateful to my family. My husband, Chris, especially for being with me every step of the way. Shortly after my lupus diagnosis, we decided to get a dog, a golden retriever named Marley. Marley, who has survived illness as well, has been my constant companion. He is a special dog who is very sensitive to flare ups. He knows when you don’t feel well and will lie next to me when I am sick.

This is why I raise my voice about lupus to help find a cure. I joined the Lupus Foundation of America (LFA) Walk to End Lupus Now Walk Committees, and I am an LFA Ambassador. I wrote articles in the local newspapers, two radio interviews on John Voket’s radio show on 95.9 The Fox, a radio interview on WPKN and even a local television station interview with channel 8 WTNH. Recently, at the LFA’s Advocacy Summit in Washington DC, I met with my representatives to share the struggles of living with lupus and the critical need for research.

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Achievements
TeamRaiser Achievement Badge
Club 5000
This participant raised $5000!
TeamRaiser Achievement Badge
Personal Gift
I made a personal donation!
My Progress:
of Goal
$8,005 Raised
$10,000.00
Fundraising Honor Roll
The James and Robin Coogan Foundation
$100
Anonymous
$500
Anonymous
$100
Anonymous
$100
Anonymous
$100
Anonymous
$50
Anonymous
$50
Anonymous
$25
Anonymous
$25
Anonymous
Bob Downs
$50
Bobbi and herb
$100
Brian and Kiana O'Reilly
Cheryl OReilly
$25
Cigna Matching Gift
$25
Colleen Hann
$50
Denis and Britta Nayden
$1,000
Denise Gannalo
$100
Dennis Venuti
$100
Donna G.
$50
Elena DeVilliers
Gail & Natalie Tine
$25
Irene Loretto
$100
karen Burrows
$20
Leo Karl , III
$100
Linda Dest
$200
Lisa Lindstrom
$50
Matt and Christy O'Reilly
$250
Maureen and Paul Rubeli
$500
Maureen Avitable
$50
Michael and Ellen Funck
$100
Mr. Mike Gaudino
$500
Mrs. Colleen Hann
$25
Patricia O'Reilly
$2,000
Pete Johnson
$250
Richard and Mary OReilly
Robert & Alyssa O'Reilly
RYan Carey
$20
Sue Chojnacki
Walter Stewart's Market
$150

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