On Saturday, October 16th I will be walking with friends and family at Doyle Community Park in Leominster, MA to advocate for better funding for Lupus research. I invite you to join me either by walking with me on 10/16, donating to my fundraising page, becoming an advocate for those of us with Lupus, or all of the above. Thank you for taking a moment to consider joining me in this deeply personal fight.
I'm walking for myself, for dear friends and family, for the many folks on journeys like mine, and for the many folks on journeys of which I know nothing about but have been impacted by this disease.
I've been flaring more days than not since Thanksgiving, 2020 and am now highly dependent on several medications to keep flares at bay. Many of my joints (hip, knee, sacroiliac, hands) are damaged from chronic, inflammatory arthritis, and I have new but well managed cardiac involvement. And I am in a significantly better situation than many as a result of privilege and positionality. I am sharing this to personalize the disease for those who are unfamiliar and to bring awareness to the reality that many people with Lupus are systematically disenfranchised and denied access to the medical care they need.
"90% of adults with Lupus are women and Lupus is three times more prevalent among women of color. Research has shown that, for people with Lupus, living in poverty is predictive of poorer disease outcomes... For many women living with Lupus, multiple forces—compounded systems of inequality, such as economic oppression, systemic racism and sexism—are actively working to keep their voices muted, bodies devalued, and agency limited. Intersectional oppression is a powerful reality."
THANK YOU for taking the time to read this, to hold space for our stories, and for considering a donation and/or joining me on 10/16! Sending love and gratitude.