2020 Walk to End Lupus Now NYC

Fight with Charm

I was diagnosed with Lupus (a.k.a. Systemic Lupus Erythematosus/SLE) on 2012. In my first flare up, my symptoms were joint pains and rashes on both of my legs. My second flare up was life threatening and it happened on November 1, 2019. I was having chest pains and shortness of breath, losing hair, swelling all over my body especially my legs, and my blood pressure was very high. It turned out my lungs were bleeding and my heart had fluid surrounding it. I was in the ICU for 5 days. I was in the hospital for a total of 17 days.

I needed supplemental oxygen to breathe. I was treated with high dose IV steroids, IV chemotherapy, 4 sessions of plasmapheresis, 2 units of blood, IV diuretics, and IV antihypertensive medications.

Now, I am recovering from this recent flare up and I am taking 12 medications a day. Hopefully I will get through this illness and be healthy again. http://support.lupus.org/goto/fightwithcharm

 

Welcome to our fundraising team page.

Imagine a day when doctors can say, "There is a cure for lupus". Until that day though, there is work to be done. That's why we are taking action in the fight against lupus. Join us as we participate in the Lupus Foundation of America's Walk to End Lupus Now® to raise critical funds for the estimated 1.5 million people living with lupus in the United States.

Will you join our team and help us reach our fundraising goal? You’ll be supporting the Foundation's efforts to improve the quality of life for all people affected by lupus. You can also support by making a secure contribution on our walk page. Every single dollar counts!

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.

Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! 

 

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