POP #PutOnPurple - if you have any kind of purple [shirt, socks, nail polish, a drawn on purple heart, a tie, jewelry, etc.] please show your support for myself and all the other amazing warriors. Let’s raise awareness! • • • • • • • • •
09.28.2024 - Walk To End Lupus NOW! ☺ #PutOnPurple • RAIN OR SHINE!
DATE: Saturday, September 28th, 2024
SCHEDULE: Check-in: 8:30 a.m. | Fitness Pump-Up: 9:15 a.m. | Ceremony: 9:30 a.m. | Walk: 10 a.m.
LOCATION: National Mall - Constitution Gardens at 17th & Constitution Ave [You can put in LockKeeper’s House in Maps as our walk site will be right behind the historical landmark] • • • • • • • • •
Lupus Nephritis is a chronic illness and hidden disability that for me, affects my kidneys, other parts of my body, and my life in general. Everyday is a mystery, but I hope that one day we'll find a way to help combat it completely. Funding for research and medicine is key, so I hope you'll help me make it one step closer to having more good days than bad. If you can donate anything, even $5, all the money goes to the LFA - an organization close to my heart.
I was diagnosed when I was in middle school, so I've been living with SLE for over half my life. I don't like to always show how I'm really feeling when I have aches or my "wolf" patch or the constant fatigue, but my positivity has gotten me through so much. I’ve had multiple kidney biopsies and a hip replacement in 2015. I’ve been on a monthly infusion called Benlysta which was finally FDA approved for my type of lupus in particular. I started this journey taking 40mg daily of prednisone and after many trials and sicknesses hindering the decrease, I’m finally off the steroids completely! I know a lot of others know that med struggle and I hope major events like this continue to help others and maybe one day we'll find a cure! Especially in the past couple of years, it’s been so difficult trying to navigate through lupus and covid and everyday life. The mental, social, & physical stress has been taking a toll more than ever. And the constant wondering if one minor thing I do will affect my routine is exhausting. I just want to help to be part of the solution and would love for you to be part of it too! We got this! I truly believe my friends and family are in full support and I feel so lucky to have that.
