We (Matt and Cindy) are Racing to End lupus for Rockee and all those living with lupus! We're training for the Rock n Roll Half Marathon on September 15, 2019!
Join us and support the mission of the Lupus Foundation of America! Our goal is to raise critical funds for the estimated 1.5 million people living with lupus in the United States. Your donation will help us reach our personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus!
Lupus just got very personal for our family. Last October Cindy started a new chapter in her career with the Lupus Foundation of America, Philadelphia Tri-State Chapter. Little did she know that just a few months later she would have a very personal connection to lupus. Matt's girlfriend Rockee was diagnosed with lupus in March 2019. Here's her story:
"I have been active all my life. Growing up I was involved with soccer, karate, skiing, track and dance. In fact, I went to college as a dance major. I felt like I knew my body and knew how much I could push myself.
As I look back, I realize I had various things happening over the years that I now think could have been lupus. I have Raynaud's Syndrome, multiple injuries over the years which I always thought were just related to the sport I was playing or dance.
Then this fall I kept getting sick. My joints were hurting, and I had random rashes along with fatigue x10! I also had swollen lymph nodes all over my body. Doctors were dismissive and kept telling me different reasons why I could be feeling the way I was feeling but nothing was lining up.
Finally, after seeing doctor after doctor and learning there was a family history of lupus, an autoimmune panel of bloodwork was run, and I was diagnosed with lupus and Sjogren’s Syndrome. I was actually relieved because we I knew something was wrong the entire time, but nobody could figure out the cause of my symptoms and finally after months of the unknown, I had an answer.
Now knowing I have lupus has made me start working on listening to my body and knowing when to slowdown. But it's a challenge everyday. I simply don't know how I will feel each day."
Did you know?
- Lupus is a complex disease that is hard to define. It strikes without warning, affects each person differently, and has no known causes or cure.
- While lupus mainly affects women between the ages of 15-44, men and children are not spared.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat lupus.
Let's end this cycle now! By making a donation today you are joining the fight against lupus!
Thank you! Love and Hugs,
Rockee, Matt and Cindy