I am Racing to End lupus!
I decided to do something I haven’t done in about 10 years, run a Half Marathon. I have decided to run the Lake Powell Half Marathon in Arizona on October 12, 2019 with Team Make Your Mark and raise money for the Lupus Foundation of America. I decided to sign up for many reasons, but mostly as a coming home, to my body, to myself, to the desert and to the work I stepped away from and returned to in a such a different way. For nearly 7 years, I worked for a nonprofit and helped build an endurance program. Every Saturday consisted of long runs with my team and every day of my life was endurance and fundraising.
Then I stepped onto a different path and stepped away from that life. I stopped running, moved to Nicaragua, got deep into my yoga practice and started a whole other reality. While I wasn’t running, I was running. I was running from a life and version of me I didn’t want to live or be. I continued to do contract work and keep my foot in the endurance space but it wasn’t like it used to be. I had changed my identity and didn’t want to be associated with the version of me that was tied to that life.
Then I got sick, very sick. I had a colitis flare in the desert of Morocco and one month later got a virus that attacked my joints and nervous system. I lost weight. I lost my strength. I had a hard time practicing yoga and once again lost the identity of who I was. Only this time it wasn’t my choice. My pain and weakness defined me. Being “too thin” became a thing. I hated how I looked and felt and went into a very bad place mentally which I think affected me more than I knew at the time. When I think about everything that has transpired since, I can see how much being out of my body affected it.
Fast forward a couple of years and life has changed in more ways than I ever could have imagined. I am now working full time in the charity endurance space and for the first time in a long time, loving it. The more I learn about the work the Lupus Foundation of America does, the more I am proud to work for them.
I feel privileged to listen to people’s stories, motivate them to put a voice to their stories and cheer them on as they do things they never thought possible. I finally found a way to balance my work and my life and I feel inspired every day.
So, after nearly a decade, I am back to running. I am back to feeling strong in my body. I am back to myself. I am no longer “running” from anything and for that reason, I am ready to run.
When I started to think about where I was going to start over, Arizona kept coming through. I wanted to be connected to the earth and I wanted to be somewhere beautiful with mountains.
Running along Lake Powell on October 12th is going to be a big deal. It’s going to be the celebration of my new life, of the life that has never felt more right. It’s going to be my celebration of finally coming home.
Join me and support the mission of the Lupus Foundation of America! My goal is to raise critical funds for the estimated 1.5 million people living with lupus in the United States. Your donation will help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus!
To read more about the amazing work the Lupus Foundation of America does and the work I get to be part of everyday, visit www.lupus.org.
Did you know?
- Lupus is a complex disease that is hard to define. It strikes without warning, affects each person differently, and has no known causes or cure.
- While lupus mainly affects women between the ages of 15-44, men and children are not spared.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat lupus.
Let's end this cycle now! By making a donation today you are joining the fight against lupus!