This week, we're focusing on treatments to manage #lupus as we've seen incredible progress in treatments being developed specifically for lupus. But none of this progress is possible without you! When you share your lupus experience with our RAY registry, you help move research and clinical care forward, including the development of new therapies to treat lupus. Watch our brief video to learn more!
Lupus Foundation of America, Inc.
Non-profit Organizations
Washington, District of Columbia 12,922 followers
Lupus is serious and relentless…and so are we! Let’s fight it together!
About us
We are devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact.
- Website
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http://www.lupus.org
External link for Lupus Foundation of America, Inc.
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Washington, District of Columbia
- Type
- Nonprofit
- Founded
- 1977
- Specialties
- Lupus Research, Advocacy, and Patient Support
Locations
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Primary
2121 K St NW
Washington, District of Columbia, US
Employees at Lupus Foundation of America, Inc.
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Karen Ng
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Mary Crimmings
Interim CEO | SVP of Marketing & Communications at Lupus Foundation of America | Strategic Marketing Communications Executive
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Joseph Arnold
Vice President, Direct Claims at Brandywine Group of Insurance & Reinsurance Companies
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Christine Miserandino
Writer/ Speaker/ Blogger/ Patient Advocate/ Brand Ambassador and Online Influencer
Updates
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DYK that May is #MentalHealthAwarenessMonth? We remind #lupuswarriors and caregivers to prioritize your mental well-being! Your journey is important, and there's support available. We developed a comprehensive list of mental health -- check it out here: 👉 https://buff.ly/3WHbA75
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What is lupus? What are the types? How is lupus diagnosed? How is lupus treated? Get the answers to these questions and more in two weeks at in our NeedyMeds webinar! Join us Friday, 5/31 at 12:00pm EST. Register Now: https://buff.ly/3QKB2oD
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The Lupus Foundation of America continues to work hard to ensure patient voices are shaping drug development and we remain focused on increasing participation in lupus clinical trials, including among diverse populations. Read this article from Xtalks to learn more: https://buff.ly/3UCJ6c7
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Dive into the world of clinical trials with Lupus Research Action Network (LRAN) participant, Nicolette. As a lupus ambassador, advocate and support group leader, she emphasizes the importance of compensation and representation in clinical trials by people of color. This Lupus Awareness Month, learn about how to find and participate in clinical trials near you: https://buff.ly/4ag3RjK
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Lab tests, especially concerning kidney health, are vital for people living with lupus. It is important to understand these screenings so that you feel confident as you work with your doctor to better manage your health. Learn more about routine blood and urine tests: https://buff.ly/4bhCvLp A special thanks to Aurinia Pharmaceuticals Inc. for helping us bring lupus awareness this May! - Las pruebas de laboratorio, especialmente las relacionadas con la salud de los riñones, son necesarias para las personas que viven con lupus. Es importante entender estas pruebas de detección para que te sientas seguro(a) mientras trabajas con tu médico para manejar mejor tu salud. Aprende más sobre los análisis de sangre y orina de rutina: https://buff.ly/4dB1OJR ¡Un agradecimiento especial a Aurinia Pharmaceuticals Inc. por ayudarnos a crear conciencia sobre el lupus este mes de mayo!
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The largest lupus advocacy event in the nation is only 1 week away! Are you registered? If you're unable to attend in person this year, we will be live streaming several sessions on May 20. Learn more here, and ICYMI, take a look at this year's agenda: https://buff.ly/3QGNAxl
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Registration is now open for the Virtual 6 Challenge in June! 🏃♀️🚴🛶 For 6 days, cover 6 miles however you choose – outdoors or inside. Whether it's running, walking, biking, hiking, cycling, or any other way you prefer. Join us in raising awareness and funds for lupus research! Sign up: buff.ly/3K4Ftql
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💊 Understanding lupus medications is critical to managing symptoms. From steroids to immunosuppressives, learn about treatment options and their impacts this #LupusAwarenessMonth: https://buff.ly/3WyXq88
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Happy Mother’s Day to all mothers who are living with #lupus, have a child with lupus or both. We hope you have a wonderful day! Feliz Día de la Madre a todas las madres que viven con lupus o tienen un hijo con lupus o ambos. ¡Esperamos que tengan un día maravilloso!