2018 Walk to End Lupus Now, New York City

In The Loop

It's that exciting, emotional, difficult and incredibly rewarding time of year again! Over the past four years with your help, I've raised over $40,000!

I need to take a second to let that sink in. The first year I attended the walk and fundraised, I set my goal for $2,500 and was ecstatic when I met it. Now, I am hoping to raise $20,000 this year.

Not only have we raised money to go towards research and helping those surrounded by this cruel disease, we are also spreading awareness like wildfire! I am so proud that so many people shared posts, shared facts about lupus, and simply shared my link of golf outing information last year. From the very bottom of my heart, thank you. You all are amazing and continue to blow me away every year.

The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus. The money raised goes towards helping those in need and searching for a cure for this cruel disease. It helps improve and research new drugs to treat lupus, as well as discovering ways to diagnose lupus more quickly and effectively. Money raised also goes towards researching the lupus' causes, how it progresses and how to better manage this disease.

Although this disease still affects my day to day life, I have improved since last year. I am switching from a once a month infusion of the ONLY medication specifically made to treat Lupus to a weekly injectable! Same medication, but no more long hospital or doctor's visits where I'll need a driver. This progress of making a subcutaneous form of the medication is due to extensive research and hard work of some wonderful people I had the pleasure of meeting last summer. I was asked to speak at a conference in Arizona explaining how this medication has helped me start LIVING my life again. What you are doing is working. Your donations and spreading the word...it's helping countless people; I am living proof.

This will be my fifth year fundraising and I'm setting my goal at $20,000! There will be lots of fun activities planned including the third annual “Nicole’s Links for Lupus” golf outing as well as some new events and ways to win prizes :-) .
Join me Saturday, May 5th at the South Street Seaport for the Walk to End Lupus Now in NY! My health is still day to day, but I hope more than anything to be there...so that's the plan!
Please click on the link below to visit my personal fundraising page. You could also become a fundraiser of your own on my team and if you raise $100 you earn an awesome t-shirt! Did you know that many companies match donations? All you have to do is ask!
Every single dollar helps...whether it’s $1 or $100, there's no contribution that's too small! Let this year be YOUR year. Make it one to remember.
Thank you so much for your continuous support, generosity and love. I know that one day I won't have to write this letter because we WILL find a cure.
All the best,

Nicole

 

 

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.

Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! 

 

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